Accessibility of National Health System Microdata (ES0017)

The Health Information System involves an effort to compile data proceeding from the Health Services of Spain's 17 Autonomous Communities, the Ministry of Health's own system, and from other sources, whether national or international. This means that merely compiling this data, with logical and structured storage, generates added value in and of itself, given that none of these bodies could collect Main Objective this data alone, thus creating a database that has great potential to be truly useful. The goal is to make available to the public the entire NHS database, where complete microdata on major statistics could be downloaded for free. Moreover, this database will be expanded as new information systems are developed. Characteristics of the service: the NHS database is accessible from the website of Spain's Ministry of Health, Social Services and Equality: http://www.msssi.gob.es/estadEstudios/estadisticas/bancoDatos.htm. Files may be downloaded for free.
The data provided is anonymised (in those operations subject to statistical secrecy because they form part of the National Statistics Plan) and include information necessary for their comprehension and use: term glossaries, questionnaires and fact sheets.
Data directory - Files are classified in two categories:
1. Open access to anonymised microdata files
- Health Barometer: The series of anonymised microdata and the necessary documents for understanding them cover 1996-2012, with a gap in 2001, since the opinion survey was not carried out that year. The Health Barometer is a statistical operation included in the 2013-2016 National Statistics Plan (PEN) and previous plans, subject to statistical secrecy. According to the dissemination calendar for the 2014 Annual Programme, the 2013 Health Barometer data is scheduled to be disseminated “no later than 30 June” of 2014. Once these results are published, then the
microdata from the NHS databank will be included.
- National Hospital Catalogue (CNH): The series of microdata and documents necessary for understanding it covers 1995 – 2012. The 2013 data in a database format is available on the webpage of the Ministry of Health, Social Services and Equality. Its inclusion in the
database is pending.
http://www.msssi.gob.es/ciudadanos/prestaciones/cen
trosServiciosSNS/hospitales/home.htm
- Catalogue of NHS Primary Care Centres: The microdata series and documents necessary for understanding it covers 2007 – 2013. The Catalogue forms part of the Primary Care Information System (SIAP).
- The European Health Survey in Spain: Only one edition was provided, in 2009. Statistical operation included in the PEN 2009-2012, subject to statistical secrecy and carried out in collaboration with the National Statistics Institute (INE). The survey is carried out every five years; the field work is being conducted in 2014.
- Spain's National Health Survey (ENSE): Statistical operation included in PEN 2009-2012 and previous plans. The microdata corresponds to the eight editions of the ENSE covering 1987 – 2011. The first five surveys were conducted in collaboration with Spain's national Sociological Research Centre (CIS), which carried out the field work; thereafter, they were carried out in collaboration with the INE.
- Inpatient Healthcare Establishments Statistics (ESCRI): This database covers microdata from 1996 (when these statistics became the responsibility of the Ministry of Health and Consumer Affairs) to 2009. Statistical operation included in subsequent PEN of the General State Administration.
- Statistics on Specialised Healthcare Centres: ESCRI has been incorporated into the Statistics on Specialised Healthcare Centres. The new Statistics on Specialised Healthcare Centres (resulting from the reform of the previous ESCRI) compiles data on installations, staffing, activity and financial data since the 2010 tax year. The statistical data for 2010-2012 are available on the NHS interactive consultations page:
http://pestadistico.inteligenciadegestion.msssi.es/
Microdata for 2010-2012 is in the process of being anonymised and the accompanying documents are being prepared, with plans to upload them to the NHS Database during the second half of 2014.
2. Application for access and data mining
National Death Index (IND): The available files cover 1987- 2014 (May of 2014). These data may only be ceded to: public or private healthcare centres, public health administrations, and public research centres. Application forms must be sent to the Secretariat of the IND Technical Monitoring Committee - Deputy Directorate General for Health Information and Innovation.
Minimum Basic Data Set (MBDS) for Hospital Admissions and Specialised Outpatient Care: Statistical operation included in the 2013-2016 PEN, and in previous plans. The microdata available in the Database contains information on hospitalisations for 1997-2010, and 2004-2010 for outpatient care. Customised data-mining is possible by request, with a confidentiality commitment. The forms and the confidentiality commitment must be sent to the Health Information and Statistics Area of the Deputy Directorate- General for Health Information and Innovation. The statistical data for the period until 2012 are available on the NHS interactive consultations webpage: http://pestadistico.inteligenciadegestion.msssi.es/

4. Accesibilidad a los micro datos del Sistema Nacional de Salud

Texto del compromiso:

El objetivo es la puesta a disposición pública del Banco de Datos del SNS donde gratuitamente pueden descargarse los micro datos completos de las principales estadísticas. Asimismo, se procederá a la ampliación de este banco conforme se desarrollan nuevos sistemas de información.

El Banco de datos del SNS está accesible desde la web. La descarga de archivos es gratuita.Los datos se proporcionan anonimizados se acompañan de la información necesaria para su comprensión y uso. Los ficheros se clasifican en dos tipos: Acceso libre a ficheros anonimizados de micro dato (que incluyen el Barómetro Sanitario, el Catálogo Nacional de Hospitales, el Catálogo de Centros de Atención Primaria del SNN, la Encuesta Europea de Salud en España EES;la Encuesta Nacional de Salud de España ENSE, la Estadística de Establecimientos Sanitarios con Régimen de Internado ESCRI, que a su vez se ha incorporadodentro de la Estadística de Centros Sanitarios de Atención Especializada). Y Finalmente los ficheros de solicitud de acceso y extracción de datos (que incluyen el Índice Nacional de Defunciones IND;y el Registro de Altas CMBD de Hospitalización y Atención Ambulatoria Especializada.

Los datos estadísticos del periodo hasta el año 2012 están disponibles en Consulta Interactiva del SNS http://pestadistico.inteligenciadegestion.msssi.es/.

Institución responsable: Ministerio de Sanidad, Servicios Sociales e Igualdad (MSSSI).

Instituciones de apoyo: Instituto Nacional de Gestión Sanitaria; Instituto Nacional de Estadística.

Fecha de inicio:          1/1/2014                                                                                  Fecha de cierre: 31/12/15

Objetivo del compromiso

Se trata de un compromiso de liberación de datos que ahonda en el acceso a la información pública. El objetivo de este compromiso fue el paulatino mejoramiento y ampliación del Banco de Datos del Sistema Nacional de Salud (SNS) así como mejorar la calidad de información vinculada a las principales bases de datos (catálogos, barómetros y encuestas)del sector sanitario en España, con el fin de poner estos micro datos a disposición del público para su descarga. Esta labor es relevante pues con ella se recopilan bajo una estructura y metodología común los datos sanitarios del gobierno nacional y de fuentes como las comunidades autónomas con las competencias sanitarias transferidas, articulando así un banco de datos sanitario al nivel nacional. Este esfuerzo forma parte de un proceso progresivo que, con los años ha ido integrando de forma paulatina los datos y bases de datos vinculados al SNS.

Según se da cuenta en el informe de progreso, en el momento de dar inicio el cumplimiento del compromiso se contaba ya con un gran avance pues el trabajo y con el banco de datos accesible desde la web con servicio de descarga gratuita.

Cumplimiento

Medio término: Completo

Ya en el informe de avance, este compromiso se valoró como completo, pues para septiembre de 2014 el servicio de entrega de micro datos estaba completamente operativo. Los datos y catálogos disponibles durante el primer año del plan de acción fueron: